Join us at the Trolley 5 Brewery on August 23rd for an evening of appies and beer to help us raise funds for Brady's Foundation!

3rd Annual Brady's Foundation Beers & Bids - Trolley 5 - Calgary - Aug 23, 2024 · Showpass

It is an unfortunate reality but sometimes, families with a child diagnosed with a rare palliative disease may be denied access to equipment because their child's condition will not improve with the use of said equipment, and therefore it is assessed that the equipment is better off to go to a child who will gain mobility instead of one with a palliative disease.  At Brady's Foundation, we believe that all children should have equal access to the necessary equipment needed to provide comfort and equality of life.

In 2023, Bradys Foundation raised $60,185 to fund our Family Support Grant Program. 

With these funds, Brady’s Foundation helped families buy hospital beds, specialized lifts, activity chairs, and other equipment to help families care for and improve the lives of their children at home. In appropriate circumstances, Brady’s Foundation also contributes funds towards extraordinary needs, like supplemental foods or groceries. 

This year, your generosity will be matched up to 50% as Brady's Foundation has been chosen as a participating charity in the Birdies for Kids, brought to you by AltaLink, program. Your support will allow us to issue funding in order to help ease the financial burden families face when caring for a child with a rare, life-limiting disease.  

We look forward to seeing everyone on Friday, August 23rd. Doors open at 7pm.  Your ticket includes entry, a drink ticket and appetizers. There will be a silent auction and 50/50 raffle to help raise funds, and Directors of the Brady Foundation will be on hand to answer any questions you may have. 

2024 Silent Auction Donors (will continue to be updated):

Adventures from Scratch https://www.letsroam.com

Burwood Distillery (Tour and tasting for 4)

Carriage House Hotel & Conference Centre (‘Dine & Stay Package’, which includes a 1-night stay in a Premium room (with a full, hot breakfast buffet for up to two people) and a $50 credit to any of our four Food & Beverage outlets. Value of $350)

Dinos Athletics family ticket package

Elbow Springs Golf Course (2 rounds of golf)

Evoolution (3-slot cedar box containing an olive oil, a dark balsamic vinegar, and a white balsamic vinegar, as well as a $25 gift card. The retail value is ~$89.)

Housework by GoCleanGo ($50 e-gift card that can be used at housework.com)

Kensington Wine Market (beer & cider basket retail value of $100.00)

Scavenger Hunts by Let’s Roam https://www.letsroam.com/ (3 hunts for 10 people and 2 date night hunts for 2)

Snowy Owl Sled Dog Tours (2-person Self Driven Dog sled experience on the Powder Hound express)

Springbank Cheese (2 X $25 Gift Certificates)

Storybook Theatre (4 tickets, $160 value)

Studio Bell (one family membership valued at $115.50)

Sunpeaks Resort (1 Alpine Lift Ticket for 2 People for the 2024/25 winter season)

Theatre Calgary (2 tickets to The Play That Goes Wrong)

The Post Hotel (1 night stay)

The Silk Road Spice Merchant (Staff Favourite Blends Spice Set with a value of $70.99)

White Wolf Rafting ($529.20 gift card for a rafting tour)

Willow Park Wine and Spirits (gift basket  valued at $250.00 and will include two bottles of wine, some accessories, glassware and a certificate to our fall events calendar) 

Vertigo Theatre (2 ticket voucher, valued at $146, to one of our shows next season.)

Rare Disease Day in Calgary

February 28, 2020

WE WELCOME EVERYONE TO JOIN US IN CALGARY OR FACEBOOK LIVE STREAM (CLICK HERE ) TO SHARE INFORMATION AND LIFE EXPERIENCES OF PEOPLE WITH A RARE DISEASE! MORE THAN 3.5 MILLION CANADIANS OR ROUGHLY 10% OF THE POPULATION HAS A RARE DISEASE.

• OPTIONAL NETWORKING DINNER PURCHASE AVAILABLE

• GET INFORMATION FROM LOCAL AND INTERNATIONAL ORGANIZATIONS

• PARTICIPATE IN A SMALL GROUP SESSION FOR SHARED LEARNING

• CREATE AN INFORMATION PACKET FOR A TOPIC THAT INTERESTS YOU

• SEND US YOUR ARTWORK AND WE WILL MAKE STICKERS FOR EVERYONE

• SEND US YOUR LOGO FOR A GROUP LOGO SHIRT

• DOOR PRIZES AVAILABLE

• OPTIONAL REDUCED ADMISSION AT GLENBOW MUSEUM (only for registered guests)

PROGRAMME

11:30-12:00 Poster Viewing

12:00-12:20 Welcome and Introduction (Dr. Aneal Khan)

12:20-12:40 Western Canada Metabolic Disease Network (Dr. Cheryl Greenberg)

12:40-1:00 Going the distance as a rare parent advocate (David Proctor)

1:00-1:20 Urea Cycle Diseases (Dr. Ramona Salvarinova)

1:20-1:30 Discussion

1:30-2:00 Refreshments and Activities

2:00-2:30 Small Group Sessions (may be revised depending on number of registrants)

• Low Protein Diets / Phenylketonuria - Metabolic Dietitians

• Supports for Families - Brady's Foundation for Pediatric Palliative Care

• Managing Medications - Christy Gilkes

• Coping with Fabry Pain - Dr. Aneal Khan

• Genetic Counselling - Heather Barnes

2:30-3:00 Living with Pompe disease (Brad Crittenden)

3:00-3:20 When life is short with a rare disease (Jaclyn Tainsh)

3:20-4:00 Leap into Understanding and Action

4:00-4:30 Prizes

5:30-7:00 Dinner at Milestones (Extra Ticket Purchase Required)

If you are attending this event, you can show your Eventbrite ticket at the front desk to get a special rate to see the Glenbow Museum before the start of the rDNA event.

For Rare Disease organization, if you are interested to have your organization logo on our group logo shirt, you will be contacted by our Event Planning Committee for further details.

For parking and wheelchair access, the best option is the Telus Convention Centre lot 60 located right across the street from Glenbow Museum.